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Behind every face is a different Neurofibromatosis (NF) story.

Support the appeal here

NF is a lifelong genetic condition that can cause tumours to grow on nerves throughout the body. No two people experience NF the same way.

For some, it affects learning, vision or mobility. Others live with chronic pain, repeated surgeries or the uncertainty of not knowing what comes next. Neurologically, NF can create tumours in the brain and spine that are sometimes inoperable.

Today, families from across South Australia are coming together with one shared goal: to support research that will improve the lives of everyone living with NF.

Research brings hope.

It helps us better understand why NF affects people so differently, develop new treatments, improve care and move us closer to a future where families face fewer challenges than they do today.

Our community says it best:

“Research may not help me now, but if it helps the children coming through, then it is a blessing.” — Brodie

“Maybe it’s the beginning of a cure.” — Jackson

“I’m excited to see what new things they learn about NF to make people’s lives better and save lives.” — Shelby

By supporting the NeuroSurgical Research Foundation’s NF research program, you are investing in hope, discovery and a better future for every person living with Neurofibromatosis. Every donation, no matter the amount, helps take us one step closer.

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