The following resources can help patients and their loved ones better understand the neurosurgical diseases and disorders they face.

ANZCTR - Australia New Zealand Clinical Trials Register

The ANZCTR is an online registry of clinical trials being undertaken in Australia, New Zealand and elsewhere.

The search function on the website allows you to conduct either a basic search or an advanced search of clinical trials available on the ANZCTR database. Once you find a relevant trial, you will be able to contact the person listed as the 'public contact' on the trial record for more information.

Please visit: https://www.anzctr.org.au/

Brain Tumour Alliance Australia

A national brain tumour support organisation, focusing on support for brain tumour patients, their carers, and the families of patients, which brain tumours affect.

Website: https://www.btaa.org.au/

Additional Links:

Brain Injury South Australia

An organistation which supports people living with an acquired brain injury. Identifying needs and delivering specialised services where appropriate.

Website: http://braininjurysa.org.au/

Services offered: http://braininjurysa.org.au/services-and-enquiries/

NDIS Link: http://braininjurysa.org.au/ndis/

Brain Foundation

A-Z Disorders

The Brain Foundation’s A-Z of Brain Disorders aims to provide a resource for people newly-diagnosed with brain-related disorders, their friends and relatives, and health professionals.

The directory contains basic information, reviewed by medical experts, about the condition and where to turn for additional information and for support.

Website: https://brainfoundation.org.au/disorders/

Community Care

Calvary Community Care has been supporting people in their own homes and communities for over twenty years.

They deliver a range of aged care, disability and other support services that enable independence, improve social connections and promote positive health and well-being.

Services offered:

  • Home Care
  • Private Home Support
  • Disability Support
  • Hospital to Home
  • Fact Sheets and Publications
  • Calvary Home Care Experts

Website: https://www.calvarycare.org.au/community-care/

Look Good, Feel Better

Look Good Feel Better is a free national community service program run by the Cancer Patients Foundation, dedicated to teaching cancer patients how to manage the appearance-related side-effects caused by cancer treatment. Women, men and teens participate in practical workshop demonstrations covering skin care, make-up and head wear, leaving them empowered and ready to face their cancer diagnosis with confidence.
Workshops cover skincare techniques to address common side-effects like dryness and sun sensitivity; makeup tips to help correct and conceal redness, sallowness, pigmentation and dark circles as well as techniques for drawing on eyebrows; and advice on headwear including scarf styling and wig selection.
Look Good Feel Better workshops are open anyone undergoing treatment for any sort of cancer, free of charge.

Paediatric Patients

Canteen

Canteen is the best place to help young people deal with the challenges cancer brings because we get it. Canteen is here for you if you are aged 12 - 25 years and cancer has turned your world upside down.

A variety of services is available, such as:

  • Counselling and individual support
  • Connect with other young people online
  • Peer support and programs
  • Youth cancer services
  • Books and resources
  • Useful links
  • For parents - online support

Website: https://www.canteen.org.au/home/how-we-help/

Childhood Cancer

Providing 30 support services to families with a child with cancer. When a child is diagnosed with cancer, they and their families can rely on outstanding levels of medical treatment, but they also need other vital services to get through.That’s where the Childhood Cancer Association steps in.

  • This includes Counselling, a Putting Families First Program. In addition, they provide:
  • Hospital visits — by our trained counsellors to give families additional support while their child is receiving treatment
  • SIBS — Super Important Brothers and Sisters — school holiday activities to help siblings understand and cope with what’s happening to their brother or sister
  • Family support pack — a help kit that can include toiletries, a diary, a digital thermometer, family entertainment passes, and, of course, Elliot, our mascot!
  • Financial assistance — available to families experiencing hardship, and coordinated through the family's Social Worker at the Women's and Children's Hospital
  • Childminding — for the child with cancer and/or their brothers and sisters

Website: https://childhoodcancer.asn.au/

Redkite

Holding it together when your child’s life is in question can feel impossible. Redkite provides the practical, emotional and financial support for families who have a child with cancer aged 18 and under, so you don’t have to face it alone.

Services include: Counselling & Social Work, Help with Bills, Fuel & Food, Connect Groups, Hospital & Social Workers, Education Grants, Dare to Dream Scholarships, Support with Grief & Bereavement, and many more.

Please view the full list of services here: https://www.redkite.org.au/how-we-help/our-services/

Website: https://www.redkite.org.au/

Parkinson’s SA

Parkinson’s SA provides support, education and information to people living with Parkinson’s and other movement disorders, their carers, family, the community and health professionals.

Website: https://www.parkinsonssa.org.au/find-information

Services offered: A range of services are offered, including face to face counselling and a 24 hour support line, support groups, information and resources, seminars, education and referrals.

Stroke SA

Support Groups

Have you or a loved one, friend or colleague experienced a stroke? Do you wish you could find people who understand? People who you can share stories with? People who may be able to answer your questions?

Northern Support Group

Meetings are held monthly at the Pooraka Farm Community Centre 126 Henderson Ave Pooraka Please contact Renee Cluse on 8284 0388.

Flinders (FMC) (previously Daw Park)

Contact Viv Wilson on 0414 604 234 for further information.

Northern Fleurieu

For further information please contact Wil Swart on 8326 2668 or 0401 410 047.

Riverland

For further information please contact Anna Castanelli - 0435 963 480 between 8.30am to 4.30pm Monday to Friday.

Stroke Foundation

Support Groups

Discover local stroke support groups across Australia, powered by stroke survivors and carers who want to see the benefits of peer support made available to as many people as possible.

Some groups cater for everyone in a local area, while others cater for particular age groups and interests. There are groups for people with aphasia, and groups for carers.

Website: https://strokefoundation.org.au/About-Stroke/Help-after-stroke/Local-stroke-support-groups-and-choirs

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